Additional resources
For patients with continued reactivity despite an avoidance diet
Still reacting?
For many people with AGS, giving up mammalian meat and organs and avoiding some medical products is enough, but a minority of people continue to react after they stop eating red meat and even dairy. The resources on this page are for them.
The below guides can help you figure out what you can and can’t eat.
Determining Your Tolerance Level
From Alpha-gal Information
Coping with Trace Exposures to Alpha-gal
From Alpha-gal Information
Additional food resources
Gelatin
A guide for people with alpha-gal syndrome.
From Alpha-gal Information.
Carrageenan
A guide for people with alpha-gal syndrome.
From Alpha-gal Information.
Mammalian Byproducts
A guide for people with alpha-gal syndrome.
From Alpha-gal Information.
Cross-Contamination
A guide for people with alpha-gal syndrome.
From Alpha-gal Information.
Barnivore
Your vegan wine, beer and liquor guide.
Personal care products
Personal Care Products
A guide for people highly sensitive to alpha-gal, from Alpha-gal Information.
Mast cell syndrome resources
At least 3 to 5% of people go on to develop symptoms consistent with a mast cell syndrome. In other cases, alpha-gal syndrome can unmask indolent systemic mastocytosis. If this happens to you, these resources may be helpful.
Mast Cell Activation Syndrome
From the AAAA•I
The Mast Cell Disease Society
Dedicated to providing support to the mast cell disease community.
Masto Connect Resource Hub
Independent resources, contributed by the systemic mastocytosis community, to provide information and support.
Mast Attack
Patient-created website, educating people about life with mast cell disorders.
Mastocytosis and Mast Cell Activation Syndromes
An informational brochure for patients, caregivers, and families from The Mast Cell Disease Society
Emergency Care for Patients with Mast Cell Disorders
An informational brochure from the Mast Cell Disease Society.
Emergency Room Guide
A reference guide for emergency room visits for all mast cell disease patients from the Mast Cell Disease Society.
What Are Mast Cell Disorders and Mastocytosis?
A video about mastocytosis, from the AAAA•I, featuring Allison Ramsey, MD, FAAAAI.